Scleroderma Victoria Incorporated began 35 years ago to support people to live with Systemic Sclerosis.
Our mission is to:
Scleroderma Victoria is run by a Committee of dedicated volunteers whom assist our members by:
Belle Kortlang, our Office Administrator operates our office at St Vincent's Hospital each Monday.
If you have an urgent medical issue, call your doctor, specialist or '000' for the ambulance.
Scleroderma Victoria (previously known as The Scleroderma Foundation of Victoria) exists and continues to grow through the dedication of many people throughout the years.
1979 We began as a self-help group with guidance of social workers Jenny Gould and Roland Airey at The Alfred Hospital with Dr Alf Barnett.
1980 We held our 1st AGM, set up our 1st regional support group, and published our 1st member newsletter.
1981 We produced our 1st information pamphlet titled Scleroderma - Problems and Solutions.
1982 We funded research into better treatments and management of the illness, with hope to find a cure.
1984 The Scleroderma Foundation of Victoria became a Public Benevolent Institution(i.e. registered charity)
1989 We became incorporated on 1 January 1989 and established an office at The Alfred Hospital.
1995 We moved our office to the Arthritis Foundation of Victoria, and then found a home at St Vincent’s Hospital.
1999 We funded St Vincent's Hospital Rheumatology Department to establish a patient database to further Australian research into the illness, which today also includes patients from Monash Medical Centre.
Membership and support groups
Membership has grown steadily throughout the years from 26 members in 1980 to over 300+members in 2014. Our membership support groups provide a time and space for our members with Scleroderma to meet and to connect with others experiencing similar health and wellbeing issues.
Scleroderma Clinical Nurses
Scleroderma Victoria funds two Scleroderma Clinical Nurses - Barbara Gemmel at St Vincent's Hospital and Kathleen Elford at Monash Medical Centre. Barbara and Kathleen provide vital and immediate care to people with Scleroderma, and contribute to international research and practice on wound management and other symptoms.