Scleroderma Victoria was established 35 years ago to support people to live with Scleroderma (i.e. Systemic Sclerosis).
The Mission of Scleroderma Victoria is:
Scleroderma Victoria Inc is run by Committee of volunteers to assist our members through:
Belle Kortlang, our Office Assistant runs our office at St Vincent's Hospital on Monday mornings.
Scleroderma Victoria exists and continues to grow through the dedication and inspiration of so many throughout the years.
In July 1979, Scleroderma Victoria began as a self-help group under the guidance of Jenny Gould and Roland Airey who were social workers at The Alfred Hospital working with Dr Alf Barnett.
The Scleroderma Foundation of Victoria Inc held its first annual general meeting and set up the first Regional Support Group, and published its first quarterly newsletter.
Scleroderma - Problems and Solutions was the first information pamphlet produced by the Foundation.
The Scleroderma Foundation gave financial assistance to research about how to better manage the symptoms of Scleroderma, with hope to find a cure, or at least better treatments.
The Scleroderma Foundation of Victoria became a Public Benevolent Institution
The Scleroderma Foundation was incorporated on 1 January 1989 and established an office at The Alfred Hospital.
The office moved to the Arthritis Foundation of Victoria, and then found a home at St Vincent’s Hospital, Fitzroy.
Scleroderma Victoria gave funds to St Vincent's Hospital Rheumatology Department to establish a patient database to further local research into the illness, and now includes patients from Monash Medical Centre.
Membership has grown steadily throughout the years from twenty six financial members in 1980 to over three hundred in 2014.
Membership support groups
Our membership support groups provide a time and space for our members with Scleroderma to meet and to connect with others experiencing similar health and wellbeing issues.
Scleroderma Clinical Nurses
Scleroderma Victoria funds two Scleroderma Clinical Nurses - Barbara Gemmel at St Vincent's Hospital and Kathleen Elford at Monash Medical Centre. Barbara and Kathleen provide vital and immediate care to people with Scleroderma, and contribute to international research and practice on wound management and other symptoms.